We are a Swiss network for Sjögren’s disease made up of patients and health professionals. Our goal is to provide information, connect patients and interested parties, ensure quality in the management, and facilitate research in the field of Sjögren’s disease.

We manage the Swiss Sjögren Cohort. Here, data form people affected by Sjögren’s disease (formerly Sjögren’s syndrome) is collected throughout Switzerland, during routine medical visits. The aim is to gather insights into the disease and its course. Participation is possible at the centers listed.

We provide local support by organizing information events for those affected. Since 2023, Sjögren’s evenings have been held twice a year at the University Hospital of Zurich in German for those affected, their relatives, and anyone else who is interested. Invitations to the next events are sent out in good time via the Sjögren’s newsletter from the University Hospital of Zurich. You can subscribe to the Sjögren newsletter by emailing sjogren@usz.ch.

Regular case discussion among experts (participation restricted to specialists, please register in advance via dispo.ruz@usz.ch), frequency: approximately every two months on Wednesdays at 5:15 pm.

Workshops for experts (in planning : salivary glands ultrasound)

We provide information material for those affected. The link to the checklist and Sicca borchure will follow. Eyelid hygiene:  https://youtu.be/ftnlz1IWAR4?si=DbiIQZNKIxLZONUU

Please contact your local doctor if you are interested in participating in a study. It is currently possible to participate in various studies in Switzerland.